Hemophilia Treatment in New York State
Hemophilia Treatment in New York State Status Report and Recommendations is available as a PDF file.
Requests for copies of this publication (or the report in an alternate format) may be directed to:
Wadsworth Center
New York State Department of Health
Empire State Plaza
P.O. Box 509
Albany, NY 12201-0509
E-mail: BTRAXESS@health.state.ny.us
HEMOPHILIA EDUCATIONAL SERVICES
The Program provides support for the Hemophilia Advisory Panel. The Panel was established in 1983 to advise the department on programs and policies pertaining to hemophilia and related congenital bleeding disorders. It has produced a variety of educational materials, including posters distributed to hospital emergency rooms throughout the state explaining how to provide urgent care to persons with hemophilia and a thirty-four page publication entitled Hemophilia Treatment in New York State: Status Report and Recommendations. In 1993, the Program was awarded a grant of more than three million dollars through a cooperative agreement with the Centers for Disease Control and Prevention to determine the incidence and prevalence of hemophilia A and B and their associated complications (including HIV infection and joint and liver disease) in New York State. New York was one of only six states to receive such an award. Between 1993 and 1998, 1,469 state residents with hemophilia were identified. Approximately 60% of these receive comprehensive care in the state's federally funded hemophilia treatment centers.
