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(New York-Mid-Atlantic Consortium for Genetics and Newborn Screening Services)

Welcome to NYMAC

NYMAC is a federally-defined multi-state collaborative that strives to ensure the health of newborns and all persons in our region through improving access to newborn screening and life-long services for people who have conditions with a genetic component.

We collaborate with patients, families, genetic specialists and other medical practitioners, leaders in public health, and newborn screening laboratories to:

  • identify the needs of patients, their families, health care practitioners, and the general public regarding living with conditions with a genetic component
  • educate the NYMAC population about newborn screening, genetics, genomics and the benefits of such knowledge
  • develop, implement, and promote improved practices in and access to testing, diagnostics, treatment, and follow-up care

NYMAC is funded through a grant from the Maternal and Child Health Bureau of the Health Resources and Services Administration (MCHB/HRSA) and is hosted at Wadsworth Center, NYSDOH.


NYMAC UPMC Pediatric Hematology Partnership

The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services is pleased to announce a partnership with the University of Pittsburgh Medical Center (UPMC) Pediatric Hematology. Dr. Debra Cohen is the principal investigator on a project to improve treatment compliance in children with sickle cell disease. Dr. Cohen's clinic implemented a successful telemedicine effort for patient's living a distance from UPMC. In the next phase of the project, pediatric hematologists are invited to Dr. Cohen's clinic to learn about her approach. The goal is to expand the project to the other areas in NYMAC including Delaware, District of Columbia, Maryland, New York, New Jersey, Virginia and West Virginia. Interested Hematologists or families in the NYMAC Region should Contact NYMAC

Family History Project

Ferre Institute completed a project that engages families in the NYMAC region to collect and apply family health history information for genetic and treatable chronic conditions. Check out these resources on the NYMAC Family History webpage:

The Ferre Institute is continuing this project at

New NYMAC webpage linking you to the most current information on the Affordable Care Act (ACA.) Click Here

The resources provided on this site address a variety of issues related to the ACA:

  • For Providers - How will the ACA affect your patients? Your practice? etc.
  • For Patients and Families - Will your state ACA programs cover your needs and help you get insurance? etc.
  • For Public Health Professionals - Does the ACA address the needs of your populations? etc.


Join our mailing list to receive NYMAC News. These are short items that will take one minute to read but will keep you well informed. These short emails will highlight activities, projects, and information that can benefit patients, their families, providers, and public health professionals toward best practices and benefits related to genetic services and newborn screening. Email us at to start receiving NYMAC News.

Take our Consumer Interest Group Survey

Click here.

We are in the process of building a Consumer Interest Group. Your input on this survey is valuable to us. And if you would like to be a part of our Consumer Interest Group, please email us at

If there is something you would like to see added to our website, please email us at