Main Body
NYMAC
NYMAC
(New York-Mid-Atlantic Consortium for Genetics and Newborn Screening Services)
NYMAC Region
Additional Resources
Other Regional Collaboratives
- Region 1: New England Regional Genetics Group
- Region 3: Southeastern Regional Genetics Group
- Region 4: The Region 4 Genetics Collaborative
- Region 5: Heartland Genetics and Newborn Screening Collaborative
- Region 6: Mountain States Genetics Regional Collaborative Center
- Region 7: Western States Genetic Services Collaborative
- National Coordinating Center
- Newborn Screening ACT Sheets and Confirmatory Algorithms
- NCC Collaborator
Federal Government Resources
- Advisory Committee on Heritable Disorders in Newborns and Children
- Centers for Disease Control and Prevention (CDC)
- Health Resources and Services Administration (HRSA)
- HRSA Maternal and Child Health Bureau (MCHB)
- Genetics and Genomics for Health Professionals
- Genetics and Genomics for Patient and the Public
- Genetics Home Reference
- National Human Genome Research Institute (National Institutes for Health)
- National Institutes of Health (NIH)
- National Library of Medicine
Professional Organizations
- American Academy of Family Physicians (AAFP)
- American Academy of Pediatrics (AAP)
- American College of Medical Genetics (ACMG)
- American College of Obstetricians and Gynecologists (ACOG)
- American Society of Human Genetics (ASHG)
- Association of Public Health Laboratories (APHL)
- The Association of State and Territorial Health Officials (ASTHO)
- International Society of Nurses in Genetics (ISONG)
- National Society of Genetic Counselors (NSGC)
- NYS Genetic Counselor Group
National Lay Advocacy Groups and Resources located in the NYMAC Region
To locate national lay advocacy groups and resources outside the NYMAC Region, please go to the Genetic Alliance Resource Repository site at http://www.geneticalliance.org/rr
- American Foundation for the Blind
- American Society for Deaf Children
- Baby’s First Test
- CARES Foundation
- Congenital Adrenal Hyperplasia Education and Support Network
- Cooley’s Anemia Foundation, Inc.
- Cystic Fibrosis Foundation
- Ehlers-Danlos National Foundation
- Exceptional Parent Global Communications
- Family Voices
- Foundation Fighting Blindness (FFB)
- Genetic Alliance
- Genetic and Rare Diseases Information Center (GARD)
- Genetic Disease Foundation
- Hearing Loss Association of America
- Hereditary Disease Foundation (HDF)
- Hermansky-Pudlak Syndrome Network, Inc.
- HHT Foundation International, Inc.
- Hopes and Dreams Foundation, Inc.
- Hunter’s Hope Foundation
- Immune Deficiency Foundation
- International Organization of Glutaric Acidemia (IOGA)
- Isodicentric 15 Exchange, Advocacy, and Support (IDEAS)/Dup15q Alliance
- Jeffrey Modell Foundation, INFO4PI
- Jewish Genetic Diseases Consortium
- Laurent Clerc National Deaf Education Center
- March of Dimes
- Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
- National Adrenal Diseases Foundation (NADF)
- National Dissemination Center for Children with Disabilities
- National Federation of the Blind
- National Organization on Disability
- National SUID/Sudden Infant Death Syndrome (SIDS) Infant Death Resource Center
- Oculo-Dento-Digital Dysplasia Support Group
- Office of Rare Diseases – National Institute of Health
- Organic Acidemia Association, Inc. (OAA)
- Osteogenesis Imperfecta Foundation
- Preserving the Future of Newborn Screening
- Project DOCC – Delivery of Chronic Care
- PXE International
- Save the Babies Through Screening Foundation, Inc
- Sickle Cell Disease Association of America
- SOFT (Support Organization for Trisomy 18, 13 and Related Disorders)
- United Mitochondrial Disease Foundation
- VISIONS: Services for the Blind and Visually Impaired