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Main Body

NYMAC
(New York-Mid-Atlantic Consortium for Genetics and Newborn Screening Services)

NYMAC Collaborative, New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services

NYMAC Region

NYMAC States

Map of the NYMAC States of NY, PA, NJ, DE, MD, WV, and VA

State Specific Resources for
People with Special Health
Care Needs

Subcontracts and Minigrants

  • NYMAC Project Coordinator/Patient and Family Coordinator
    November 1, 2011
    • Johns Hopkins Medical Institute
  • Education and Outreach of Consumer and Advocacy Organizations
    November 1, 2011 – May 31, 2012
    • CARES Foundation, Union, NJ
    • Genetic Alliance, Washington, DC
    • Hunter’s Hope Foundation, Orchard Park, NY
    • Immune Deficiency Foundation, Towson, MD
    • Sickle Cell Association of New Jersey, Newark, NJ
    • Sickle Cell Thalassemia Patient’s Network, Brooklyn, NY

  • Transition Navigator
    May 2011 – May 31, 2013
    • Nemours/Alfred I duPont Hospital for Children, Wilmington, DE
    • Children’s Research Institute – Children’s Center for Cancer and Blood Disorders of Northern Virginia, Falls Church, VA
    • University of Maryland, Baltimore, MD
  • NYMAC Project Coordinator/Patient and Family Coordinator
    September 30, 2004 - October 31, 2011
    • Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE
  • NYMAC Evaluation Consultant
    September 1, 2007 -
    • SG Associates Consulting LLC, New York, NY

  • Transition Education Program for High School Students with PKU
    September 1, 2009 - August 31, 2011
    • Children's Hospital of Pittsburgh of UPMC Health System, Pittsburgh, PA
  • Integrated Care Plan for Children with Special Health Care Needs within a Medical Home Coordinated by the Specialty Care Provider in Collaboration with a Primary Care Provider
    June 1, 2009 - May 31, 2012
    • Albany Medical College, Albany, NY
    • Brookdale University Hospital and Medical Center, Brooklyn, NY
    • University of Maryland Medical System Foundation, Baltimore, MD (ended 5/31/11)
  • Evaluation of Electronic Personal Health Record System
    April 1, 2009 - May 31, 2011
    • Albany Medical College, Albany, NY
    • Children's Medical Center at Stony Brook, Stony Brook, NY
    • Regional Medical Genetics Center, Inc., Hawthorne, NY (ends 5/31/12)
  • Secretary’s Advisory Committee on Heritable Diseases in Newborns and Children Subcommittee on Follow-up and Treatment Metabolic Foods Survey
    April 1, 2009 – May 31, 2009
    • Albany Medical College, Albany, NY
    • Children’s Hospital of Pittsburgh, Pittsburgh, PA
    • Mount Sinai School of Medicine, New York, NY
    • Regional Medical Genetics Center, Hawthorne, NY
    • University of Maryland School of Medicine, Baltimore, MD
    • University of Rochester, Rochester, NY
    • University of Virginia, Charlottesville, VA
    • Virginia Commonwealth University, Richmond, VA

  • Development of Clinical Practice Guidelines and Centers of Excellence for the Care of People with Congenital Adrenal Hyperplasia
    February 1, 2009 - May 31, 2010
    • CARES Foundation, Union, NJ
  • Update and Append with NYMAC Resources Genetic Alliance's Understanding Genetics: A NYMAC Guide for Patients and Health Professionals
    May 1, 2008 - October 31, 2008
    • Genetic Alliance, Washington, DC
  • Illustrations for Genetics and Your Health Brochures
    April 1, 2008 - August 31, 2008
    • Tracy Mello Art & Design, Argyle, NY
  • Teratogen Information Service (TIS) Infrastructure and Educational Outreach Projects
    January 1, 2007 - May 31, 2007
    • Ferre Institute, Binghamton, NY
    • Magee-Women's Research Institute & Foundation, Pittsburgh, PA
    • Southern New Jersey Perinatal Cooperative, Pennsauken, NJ
  • Development of Case Management Databases
    July 1, 2005 - May 31, 2007
    • Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE (All)
    • The Brooklyn Hospital Center, Brooklyn, NY (Hemoglobinopathy)
    • Children's Hospital Foundation at Westchester Medical Center, Inc., Valhalla, NY (Endocrine)
    • Children's Hospital Foundation at Westchester Medical Center, Inc., Valhalla, NY (Metabolic)
    • Children's Hospital of Philadelphia, Philadelphia, PA (Metabolic)
    • Children's Medical Center at Stony Brook, Stony Brook, NY (Metabolic)
    • Lincoln Medical and Mental Health Center, Bronx, NY (Hemoglobinopathy)
    • Mount Sinai Medical School, New York, NY (Endocrine)
    • Mount Sinai Medical School, New York, NY (Metabolic)
    • St. Joseph's Regional Medical Center, Paterson, NJ (All)
    • University of Rochester, Rochester, NY (Metabolic)
    • Virginia Commonwealth University, Richmond, VA (Metabolic)

Any current Requests for Applications are available at Health Research, Inc. (www.hrinet.org). Click on 'funding opportunities'