NYMAC
(New York-Mid-Atlantic Consortium for Genetics and Newborn Screening Services)

Distance Strategies Work Group

Vision: All people with special health care needs (PSHCN) who are in need of genetic services will have timely access to the appropriate care and treatment necessary.

Distance strategies are those strategies that help build the necessary bridges and linkages to services needed and include phone consultation, telemedicine, and other approaches

Goal: Improve access to health care services by developing distance strategies that make medical services more accessible and available to people with special health care needs.

Chairs: Donna M. Cashman, PHN, MS; Robert Cicco, MD

Coordinator: Kate Tullis

• Membership

• Meetings & Conference Calls:
  • Next Meeting:
    Summer 2008
  • Next Conference Call:
    No future conference call planned at this time.
    
  • Past Meeting:
    October 15, 2007 – Philadelphia, PA
  • Past Conference Calls:
    March 27, 2008
    February 7, 2008
    
  
  
• Documents: Infants who live too far from a treatment center for reasonable
  access to appropriate care with the following conditions:
  • Sickle Cell Disease (SCD)
  • Congenital Primary Hypothyroidism (CH)
  • Phenylketonuria (PKU)


• Links

For more information pertaining to this Work Group and its activities, please contact the Coordinator.