Newborn Screening Program
General Information
General Information
New Information and Updates
Health Provider Information
Health Provider
Information
-
On-Line Ordering
- Blood Collection Forms
- Newborn Screening
Brochures and
Educational Material - Specimen Collection DVD
-
Watch Blood Specimen
Collection Video - Management Guidelines:
- Public Health Law
- Regulations
- Annual Reports
- Obtaining Results
- Hospital Designee Form (PDF)
fill out, print and mail...
Contact Us
Contact Us
- Mailing Address:
Newborn Screening Program
NYS Department of Health
Wadsworth Center
Empire State Plaza
P.O. Box 509
Albany, NY 12201-0509 - Phone: (518) 473-7552
- Email: nbsinfo@health.state.ny.us
Guidelines For the Treatment of People with Sickle Cell Disease
One of the primary concerns of the Sickle Cell Advisory Committee (SCAC) of the Genetic Network of New York, Puerto Rico and the Virgin Islands (GENES) has been the improvement of care for the sickle cell patient. This concern is particularly relevant because of the variety of settings in which these patients receive care and because of the impact that changes in the health care system has had on these settings. In line with the current national movement toward devising "practice guidelines" and "clinical pathways," as well as initiatives already begun in other states such as Texas and Colorado, SCAC established a subcommittee in 1997. Its members were charged with writing clinical guidelines as a means of both assisting the practitioner who renders care to patients with sickle cell disease, and providing a means of assessing the adequacy of care. The following guidelines represent a consensus document by health care providers who have both expertise and experience in working with sickle cell patients, and includes significant consumer input. Whenever possible, recommendations are evidence-based, but it should be noted that sickle cell disease is extremely protean in causation, pathophysiology and presentation. In many instances rigorous scientific data do not exist for recommendations. A comprehensive list of references is provided, and usually when recommendations are based on established practice of qualified hematologists, rather than on extensive clinical trials, this fact is noted. We chose to use a dual format: a brief text (PDF -- 427K) followed by a schematic algorithm (PDF -- 106K), with the assumption that this provides the reader the maximum clarity with the minimum time investment.
- Guidelines For the Treatment of People with Sickle Cell Disease (PDF -- 427K)
- Guideline Algorithms for the Treatment of People with Sickle Cell Disease (PDF -- 106K)
The complete guideline is available as a Portable Document Format (help for PDF) file.
Requests for these guidelines in an alternate format can be made by contacting Newborn Screening.