NYMAC (New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services) was established in September 2004 as one of seven regional collaboratives in the country funded by the Genetic Services Branch in the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau.
The NYMAC region includes Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia and West Virginia. Individuals from our region with genetic disease and their families, advocates, healthcare professionals and public health professionals collaborate to ensure that individuals with heritable disorders and their families have access to quality care and appropriate genetic expertise. The Wadsworth Center, New York State Department of Health is the lead institution for this project.
Much of the work of NYMAC is accomplished through six workgroups, each with goals and projects undertaken by members expert in the specific area. Workgroups include:
- Capacity and Communication
- Emergency Preparedness
- Health Care Access and Financing
- Primary Care Linkages and Strategies
- Public Health
NYMAC and University of Pittsburgh Medical Center Enter Partnership to Improve Treatment Compliance for Children with Sickle Cell Disease using Telemedicine
The New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services is pleased to announce a partnership with the University of Pittsburgh Medical Center (UPMC) Pediatric Hematology. Dr. Debra Cohen is the principal investigator on a... read more