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Funding

The New York State Newborn Screening Program has a long history of partnering with internal and external entities in support of improving our newborn screening program. To this end, we actively seek funding opportunities and cooperative agreements. For example, in 2013, we partnered with the Mount Sinai School of Medicine and National Insititute of Child Health and Development, in cooperation with 4 hospitals in New York State, to detect additional lysosomal storage conditions in a consented fashion. Parties interested in working with us are encouraged to contact us.

Active

  • Parent Project Muscular Dystrophy (3/15/2019-3/14/2021) Project Title: "Duchenne Muscular Dystrophy Newborn Screening: Pilot in NYS", $2,505,718

  • Center for Disease Control and Prevention (9/30/2018-9/29/2020) Project Title: "New Disorders Implementation and Data Harmonization", $599,548

  • Health Resources Services Administration (6/1/2017-5/31/2020) Project Title: "Regional Genetics Network", $1,800,000

  • Center for Disease Control and Prevention (9/30/2015-9/30/2019) Project Title: "Development/Validation of NGS for SCID NBS", $1,000,000

  • University of Colorado Denver (9/1/2015-7/31/2019) Project Title: "Improving Timeliness in Newborn Screening", $138,366

Completed

  • Biogen Idec/Columbia University (7/1/2017-6/30/2018) Project Title: "Newborn Screening for Spinal Muscular Atrophy", $257,809

  • Association of Public Health Laboratories (1/1/2017-8/31/2018) Project Title: Peer Network Resource Center for New RUSP Disorders", $120,000

  • National Institute of Health/National Institute of Child Health and Development (9/4/12-5/31/17) Project Title: "LSDs: A Pilot NBS and Examination of the Associated Ethical, Legal, and Social Issues", $2,042,801

  • Biogen Idec/Columbia University (7/1/2015-6/30/2016) Project Title: "Newborn Screening for Spinal Muscular Atrophy", $205,439

  • Eunice Kennedy Shriver National Institute for Child Health and Human Development (9/26/2014-3/25/2016) Project Title: "Newborn Screening Pilot Study for Pompe Disease", $491,660

  • Health Resources Services Administration, Program Director (6/1/12-5/31/17) Project Title: "Genetic Services Project", $1,200,000